If I Had Only Known…

A Letter From Cameron Benninghoven
It's my mission to increase awareness and stimulate further research about SUDEP.

My name is Cameron. At 36 years old, I was in the prime of my life; financially successful and seemingly the picture of good health.

Sure, I had epilepsy but medication managed it very well! In fact, I had very few seizures during the 20 years I was diagnosed with Epilepsy.

On the night of November 4, 2009, however, I went to bed as usual, and never awoke. The doctors called it SUDEP – sudden unexplained death from Epilepsy.

If I could change things, I would want to better understand the seriousness of my disease, and to protect myself and the people I left behind. That’s why I’m making it my mission to increase awareness and stimulate further research about SUDEP.

My dream, shared by my family and loved ones, is to raise funds for the development of a monitoring device to prevent SUDEP and to increase the database of useful information. I hope you will support me in my mission by doing one or more of the following:

4 Ways to Support Hope4Sudep:

1. Share my awareness campaign with 4 of your friends and relatives; ask them to share this information with 4 of their friends, and so on.

2. Contribute financially to projects by clicking here, all amounts are greatly appreciated.

3. Sponsor or plan an event to benefit Hope4SUDEP email info@hope4sudep.org for more information.

4. Learn more about Epilepsy and SUDEP and become an advocate.

By sharing my story I hope to spare others from SUDEP, if I had known more about SUDEP, I might be alive today. Please pass along my story.

-Cameron Benninghoven

The Facts

Facts about Epilepsy

Ways you can help me make a difference

important things to know about epilepsy

wishes of my family

Hope4SUDEP Partnered with CURE

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